I am just so relived that Sammy's surgery is over and that it was such a success! Each doctor that comes in to see Sammy is just so amazed that Dr. Smith was able to get the tumor all out! It is funny because I really like the show Gray's Anatomy. For those of you not familiar with the show (I know who doesn't watch it) it is about doctors, and the main characters are residents, all of whom fight over who gets to scrub in on the "good" surgeries. As soon as I heard what the doctors were going to do with Sammy I knew all the residents would be gunning to get in on her surgery...and those of you that know me know that I just can't keep my mouth shut and I called them all on it! After the surgery was over there were residents in our room (they travel in packs) and I said "I bet you all wanted in on this surgery didn't you?" and they didn't deny it! Funny, makes me realize what an amazing surgery my little girl went through!
As far as an update on Sammy, she is really doing wonderfully and I think we are going to be able to go home tomorrow! She is up and moving around, is able to walk, and take all of her medications by mouth. She is off narcotics for pain and is only taking Tylenol. She is such an amazing little girl, but boy does she have my temper and she does NOT like being sick. In fact we got our own single room because she was throwing temper tantrums and keeping our neighbors up! That tensasity I think is what will bring her through this situation...and it might be a pain in the ass some times, but I'm glad she is a little fighter!
We expect to hear from the oncology folks at some point next week and will need to make a trip down to Boston to meet with them to figure out what treatment plan is necessary. The good news is that is she does require chemotherapy, they will most likely be able to do it in Portland with the doctors from Boston still controlling her treatment. She will also need to have MRI's every three months for a period of time to ensure nothing grows back and we will do that in Boston as well. We will also be referred to a local pediatric physical therapist to help Sam regain some strength in her right side (although it is already better than before her surgery).
For now, we are looking forward to going home, although I am a bit nervous about it. It is a little scary to be so far away from her doctors, but I will live! On another note, Adrian has been staying with Zach in the Ronald McDonald house for the past two nights and has slept through the night without eating...keep in mind he has never slept through the night for me! Zach tried to give him some formula and he flat out refused it and went right back to sleep when offered it. I have him with me tonight, so keep your fingers crossed I don't cave when he wakes up and nurse him! :)
I will keep you all updated!