So anyone that knows me knows how much I hate change...which is not very good since life seems to change all the time! I have been trying not to think too far in the future; at this point only thinking about the surgery. However, every now and then it dawns on me that my life has been turned completely upside down! Nights are usually hardest for me, the kids go to bed and I am stuck in the room with them and I start thinking...that is never a good thing!
Being in this house is both wonderful and scary, many of the parents have been going though situations like us for many years...and I can't help but wonder if we will be going through this for many years. There are no intact families here other than ours, all the other families here have the sick child and one parent here with the siblings and other parent home. I know that if this goes on for too long that will be our case as well and it breaks my heart to think of having to leave Adrian. I feel so bad that he is being affected by this, but at the same time I want to be able to give Sammy what she needs as well. Oh well, I guess time will tell and life is all about the journey not the destination. I need to remember that!
Anyway, we had a good day today, we ventured to Boston in the car with no map and no idea how to get around...that was interesting, but we didn't get too lost! We are looking forward to snow in the city tomorrow, we just hope that everyone that is travelling down for Sammy's surgery makes it here safely. Oh another change I forgot, Sammy suddenly started calling me "Mom" instead of "Mommy" and she says it with and attitude...what is up with that and why would my cute little girl now start calling me "Mom" with an attitude! :) I guess just another change to get used to!