About three months ago, we had been noticing for a while that our three and a half year old dauther had a slight tremor in her right hand. We made a call to the doctor who indicated that it was probably just a concentration tremor and not to worry about it unless it seemed to get worse. Over time, the tremor became worse and we also noticed that she was falling a lot when walking and almost always was stumbling around. I was starting to get worried, but thought that maybe she was a little delayed in her fine motor skills as she has a cousin that has sturggled with that. Last Monday morning however, I noticed that she was not using her right hand to perform normal tasks (eating, brushing teeth, etc) and when I asked her to use her right hand she could use it for anything that required fine motor skills. I was scared and my husband and I decided to take her to the ER.
The ride in was really stressful, I knew in my gut somthing was really wrong, but at the same time kept trying to convice myself that she was find and I was just over reacting. We got to the hospital and they got us right in. The doctor looked at her and when he checked her reflexes he noticed that her right foot moved the wrong way when he stimulated it. He indicated that we would do a cat scan. She got a cat scan within an hour and they immediately told us that they had spotted a mass and that we needed an MRI. Next thing you know we were in an ambulance heading over to Central Main Imaging where they would perform the MRI. They didn't want to sedate her so she was awake the whole time and she was scared! I had to climb in the tunnel with her and she cried and screamed the whole time. The results confirmed that she had a tumor.
The doctor met with us and gave us the option of going to Maine Med or The Children's Hospital in Boston. We chose to go to Boston. We were required to take an ambulance down, I rode with Sammy and Zach followed behind in the car with Adrian. We were just so shocked. We got to The Children's hospital that night and they admitted us. We stayed in the hospital for three days and they have scheduled a surgery to remove all or as much of the tumor as they can for Thursday January 29th. They do not know what the tumor is, and we won't know what it is until about a week or so after her surgery.
We are now staying at the Ronald McDonald House in Boston and it is absolutely wonderful! Very homey and so helpful to be with other children and parents going through similar experiences. This is such a hard situation, but we are just so grateful for all the support and encouragement we have received from so many people - including complete strangers. I was always really shy about offering support to people going through hard times, it felt weird. Going through this situation has made me realize how important it is to reach out to the people around you. I want to extend a heart felt thank you to everyone who has sent positive thoughts and prayers our way and ask that you continue to do so.
I will do my best to update this on a regular basis so that you can follow Sammy's progress. She is such a strong resiliant little girl and I KNOW she will pull through this!